TEDMED Talk given in Washington, D.C
TEDMED Talk given in Washington, D.C., September, 2014
The Library Journal says:
"An ordained minister, Jarvis worked as an oncology care chaplain prior to her own breast cancer diagnosis. But if you expect a staid, glass-is-half-full sermon, hold on to your garters, because Jarvis is nothing like the recruitment films. In an email to family and friends, her second thought upon diagnosis was, "Oh, shit." And among the discussions of the trials and travesties of the disease, she addresses her faith and conversations with "Mr. Martha Miyagi." No matter your own belief system, Jarvis is a breath of fresh air in the congested world of health memoirs."
Recommended for most libraries.
Publishers Weekly says:
"Jarvis is an ordained minister with a bawdy sense of humor, and a breast cancer survivor who believes in telling it like it is. She's probably not everyone's cup of tea, especially if you believe certain topics are meant only for a doctor's office and/or the bedroom. Still, don't pass this book by without giving it a goóif you have breast cancer, it might be exactly what you need. A chaplain at the Seattle Cancer Care Alliance, Jarvis cares deeply about others, and for all her fast talk, she's a listener. The accounts of other people's struggles are among the most moving in the book. She is also guided by a spiritual sensibility that transcends organized religion. But most of all, she's walked the walk. Diagnosed with breast cancer at the same time as her mother was, she underwent a mastectomy, chemotherapy and an implant with courage and, yes, a sense of humor that signals a deep appreciation of life. The title comes from patients whose first question after being diagnosed with breast cancer often is, will I lose my hair? And Jarvis, because she is truly wise and compassionate, understands what they are really asking: will I lose my life? "
"You don't need to have experienced cancer to appreciate this book--not by a long shot."
-Reader's Digest, July 2008 --Reader's Digest
2009 Finalist -- Washington State Book Award
I am the general oncology outpatient chaplain at the Seattle Cancer Care Alliance (SCCA). I see patients who are receiving chemotherapy, getting radiation, having their blood drawn, or waiting to see their oncologists.
I was in my fourth year at the SCCA when I received the upsetting news that my mother had been diagnosed with breast cancer. However, I didnít have much time to be disturbed about it because five days later I was diagnosed with breast cancer. I couldnít decide if her case or mine was the most disturbing, so I settled on being equally disturbed about both.
Still, like having your car break down when you work at an auto repair shop, I thought if you had to have cancer, it was pretty convenient to work at a place that treats it.
ďBut youíre the chaplain! You should be immune!Ē I heard this from a lot of outraged people, as if I had some special spiritual protection.
So what if Iím the chaplain? Iím a Christian, the faith thatís all about the crucifixion of the guy who is considered the Son of God! I mean if the Son of God canít get a break, why should I? Iím only the chaplain.
So I chose to have my surgery and chemotherapy at the University of Washington, the medical center affiliated with SCCA. During my first appointment with my oncologist she made it clear she completely understood if I wanted to go elsewhere if I felt uncomfortable or for reasons of privacy.
ďWhy,Ē I asked, ďwould I not want to be treated at a place that is filled with people I know and love? And why would I not want to be treated at a place where I have witnessed the finest care given in my twenty years as a hospital chaplain? And above all, why would I not want to be treated at a place where I know the location of every single restroom?Ē
She got my point.
Besides knowing the staff and the location of the restrooms, I had another advantage. I had seen people deal with cancer a thousand different waysósome inspiring and some less so. Iíve listened to patients who tried to pretend cancer is a million yucks. Itís not. Itís not even a hundred.
And Iíve listened to people who are whiny and tragic. Even if your situation is tragic, it doesnít feel good to whineófor very long. Forgive me if I sound harsh. Iím not talking about expressing your feelings, Iím talking about whining, and there is a the difference.
Whining is basically about being stuck. You are stuck telling the same story in the same way in spite of everyoneís efforts to help you resolve it or reframe it or find meaning in it.
Somewhere between the joking and whining, there is this precious place of absolute centerednessópeace in the eye of upheaval and chaos. It is an assertive kind of peace because it takes effort to stay grounded and centered while things swirl around you. Itís not as if youíre just sitting there blissed out, denying your pain or your fear. It means you feel your feelings, give them a voice, and then move on.
I have read a new patientís chart and thought, "Holy-Jesus-God-and-all-the-saints! What a disaster!" But then I met this patient, and she was all upbeat and grateful for this and grateful that. She said, ďHereís a funny thing that happened on my way to brain surgery . . ."
I wanted to say, ďHave you read your chart lately?Ē But I could tell she knew exactly what was going on and was being completely authentic. It was all in how she chose to be with her situation. She was her Best Real Self.
Thatís how I wanted to be: my Best Real Self. For some people that means being more private about it, but for me, that meant being very open about my diagnosis. So I sent out e-mail updates on my treatment progress. Friends and family wanted information, and they also wanted to know how I was with what was going on. And my therapist friends wanted to know how I was with how I was.
Knowing that time is precious and e-mail can be overwhelming, I included just a few thoughts and feelings in each message. I wanted to write more about what surprised me, what helped me, and what disappointed me, but it didnít feel right to send six page e-mails. Itís an e-mail, not an electronic book.
I learned much about cancer from being a patient, and probably the most astounding thing to discover was only a small part of the cancer experience is about medicine. Most of it is about feelings and faith, and losing and finding your identity, and discovering strength and flexibility you never knew you had.
Itís also about looking at life and staring death in the eye. Itís about realizing the most valuable things in life are not things at all, but relationships. Itís about laughing in the face of uncertainty and having the courage to ask for more chocolate and less broccoli.
And, if you havenít figured it out by now, itís about realizing cancer is the best excuse for getting out of practically anythingóexcept chemotherapy.
And although many people asked me how I felt about it, what it was going to be like to lose it, and how I was going to deal with not having it . . . itís not about the hair.